Archive for the ‘Caregiving Tips’ Category

Senior Care Questions: How Do I Know if My Loved One’s Eating Right?

Friday, May 10th, 2013

The following blog from guest blogger, Shannon Martin, can also be read here.

In our Senior Care Questions blog series, we answer your questions about eldercare issues and senior care concerns.  These are some of the most common questions we get about caring for aging parents (we welcome your questions in the comments section below or by filling out a private form online with your senior care question or comment).  Today’s senior care question: How can I make sure my elderly parent is eating well (and is this something that should concern me)?  What hints should I look for and what resources can help?

As many of you heard, our Senior Care Consultant, Susan Talbott, was recently a guest on The Caregiver Hour radio show announcing our exciting new Inspirational Caregiver Award and giving away three free hours of respite care to a local caregiver.  If you weren’t able to catch the show live, you can click here for The Caregiver Hour audio.  Another guest on the show was Rick Phelps, founder of Memory People.  Rick has early onset Alzheimer’s disease and presented first-hand the problem of eating and dementia.  As Rick shared, he often forgets to eat and even phone call reminders can be problematic as he may forget if caught up in other tasks.

With dementia in particular, getting proper nutrition can be a problem.  Food may not smell or taste the same and the person may have issues of recognizing the food or managing the process of eating, in addition to simply forgetting to eat (or forgetting he/she ate already and eating more than intended).  Meal preparation and the process of shopping and planning meals will become difficult as the disease progresses, and are often early signs of the cognitive problem.  At late stages of the disease, those with Alzheimer’s disease generally lose the ability to feed themselves and may also experience swallowing problems.

Even older adults who do not have dementia will often face challenges when it comes to getting proper nutrition.  Sense of taste and smell diminish with age.  Some diseases and medications can impact sense of taste as well as appetite.  Certain disease may affect swallowing. Loneliness and depression can affect appetite.  Many people eat less when alone, or may be less likely to cook or take time to enjoy a full meal.  Lack of physical activity also decreases appetite.

If your older loved one does not drive anymore he or she may have difficulty accessing a variety of food.  The process of planning and preparing meals may become difficult and the senior may rely on highly processed foods or restaurants.

These challenges are made all the more difficult by the fact that older adults actually need to consume a more nutrient-dense diet.  This is especially important when fighting certain diseases and in many medical conditions where special diets should be followed.  Poor nutrition can worsen many diseases, diminish energy and cognition, and increase safety risks.  The best medical treatment can be derailed if not accompanied by proper nutrition (such as a cardiac patient who has had cutting edge treatment but continues to eat a high fat, high sodium, low nutrient diet or a patient on blood thinners who does not comply with restricted foods).

Here are some ways to evaluate if your elderly parent is eating well:

  • Take a look around the kitchen.  Is there appropriate food in the refrigerator and pantry?  Are there expired items?
  • Go shopping and/or plan a meal together.  This can be a fun activity, while giving you the chance to evaluate how your loved one thinks through the process and handles the tasks.
  • Physical signs include weight loss or gain, dehydration (skin elasticity is one good indicator, urinary tract infections may also indicate a problem), passing out and overall poor health (weakened immune system, difficulty recuperating, indications in blood work).
  • Get a professional evaluation and/or consider periodic care management assessment visits to ascertain if there is a problem proactively, especially if you are a long-distance caregiver.

Senior care resources and nutrition tips:

  • Consider the value of home caregivers providing meal preparation and senior nutrition services.  Home caregivers can do everything from planning meals and shopping to preparing meals and providing company for meal times.  Services are flexible, so a home caregiver could visit every day or prepare several meals in advance.
  • For persons with dementia, continually evaluate and adapt as the disease progresses.  Various types of reminders and memory aids may work, but this may change over time.  You may be able to call your loved one with reminders at first, but at some point you might need to ensure a caregiver is there at meal times or assist with cooking and feeding.
  • A variety of food is not only best for dietary needs, but also makes eating more appealing.  Varied colors, textures and flavorings can help stimulate appetite.  Herbs and seasonings can make up for taste changes, without simply adding more salt.  Help your loved one with meal and food ideas and shopping for such items, or consider hiring help with this task.  If you’re working with home caregivers, you can provide old family recipes or guidelines about dietary needs and preferences.
  • Don’t underestimate the importance of meal time company.  If your loved one is not eating well, consider making a plan to have someone visit during most meals (or at least one main meal/day).  You could make a schedule of family, friends and home caregivers for meal visits. You can also check in to congregate dining programs offered in your county as a group option.  Meals on Wheels and other such services can be good for nutritious meals and often the volunteers serve as another point of contact checking in on your loved one.  However, this may not solve the issue of eating alone.
  • Evaluate and fix potential physical problems.  Bad fitting dentures or dental issues can make eating unpleasant.  Medications may be impacting appetite.  If you notice the person is coughing a lot or having trouble swallowing, be sure to get swallowing evaluated.
  • Consider ways to bolster activity.  Take a walk together, provide a variety of social contact, find appropriate ways to add physical activity/exercise to the daily routine (check with your doctor first).  You might want to consider a personal trainer who specializes in older adults (we recommend In Home Fitness in Pinellas County).  The caregiver can then help maintain the routine and encourage the activity.

If you need more tips about eating and dementia, evaluating older adults’ nutrition and eating or need meal preparation and home caregiver services in Pinellas and Pasco counties, we’re here to help!  Call us at 727-448-0900.

The “AAA” Dilemma of Caregivers

Saturday, March 30th, 2013

By: Linda Burhans

Many times we think we’re too selfish and often feel ashamed about it. But the truth is the caregivers get out of the habit of taking care of themselves. Here’s how it works; you find the whole thing almost impossibly hard, yet other caregivers do it without complaining or giving up so there must be something wrong with you; and you drive yourself on until you’re ready to drop.

We didn’t apply for the job caregiver. We’ve had no training. We’re not even sure if we are good at it. And on top of everything, we’ve got our own life to lead.

Informal caregiving is a challenging, yet rewarding experience. Understanding how to balance responsibilities by taking care of your needs and involving others helps manage the natural stress and isolation of being a caregiver.

In the past several years, I have facilitated over 600 support groups and workshops for family caregivers. I always find a consistent common thread. I call it the “AAA” Dilemma of Caregivers.

Caregivers do not Ask for help, they do not Accept help, and they do not Acknowledge themselves.

Many times caregivers are asked by a friend, neighbor or coworker,  “Is there anything I can do to help you out?”  And invariably the caregiver answers “No, I’m okay.”
And most of the time we are not okay. We definitely could use some assistance. Usually we just do not know how to answer. And when we keep saying no and not accepting help, people stop asking. For some reason many of us caregivers think that it is our total responsibility to take care of our love ones.

I suggest to caregivers to take a little time to sit down and write a list of some things you can accept help with. So the next time your friend or neighbor asks if they can help you, you can pull out your list and perhaps ask them to mow your lawn or pick up some groceries?

I guarantee they will be delighted to help you. That’s why they have been asking!

One woman emailed me after attending one of my workshops. She said she thought about what I had said and decided to make a list. She only put one thing on her list and that was if someone could come over any afternoon between 2 and 4 PM and let her take a nap that would be just wonderful. Her exact words were “And I am pleased as punch to tell you that I am now napping seven days a week and my husband is getting seven different visitors that had stopped coming.”  WOW!

So I strongly encourage all Caregivers today to ask for help, accept help and acknowledge yourselves. YOU ARE NOT ALONE!  There is help

Linda Burhans is a Caregiver Advocate with Harmony Home Health (www.harmonyhh.com) and is the author of the book “Good Night And God Bless”

3 Steps to Organized Medical Records for Caregivers

Friday, October 5th, 2012

A big frustration for caregivers is the never-ending medical paperwork that goes with the territory.  When scheduled medical appointments or, even more stressful, the unscheduled medical emergency arises, medical information for the loved one in your care is crucial.  Whether you’re keeping medical records already or are trying to organize them for the first time, there are 3 main steps in this journey — Gather, Organize, and Maintain.

Gather – This first step may be the most difficult if you haven’t already been keeping good records, but it’s not an impossible task.  Pull together all records currently available to you.  If you are missing information or records, you can obtain copies of those by contacting each provider separately and requesting a copy of the medical record – both current and past.  Be ready to fill out & sign each provider’s release of information form.

Organize – I recommend a “grab-and-go” system for most caregivers.  There are countless commercial products, both paper and online, to help with personal, medical & financial records.  I’ve included a short list below.

You may decide that an old-fashioned 3-ring binder with dividers or an accordion file with a flap closure will work for you.  If you decide to go this route, the National Caregivers Library has a number of wonderful, free checklists at http://www.caregiverslibrary.org/caregivers-resources/grp-checklists-forms.aspx#physical to help you set up a system that works for you.  Typical sections are:  Physician addresses & phone numbers, medications & immunizations (including over-the-counter & supplements), lab tests & results, doctor visits, medical history, home health care, therapies, advocacy records, and insurance information.  You may want to include a calendar for logging appointments and a healthcare journal for keeping notes during phone calls and doctor’s visits.

Maintain – As in any system, once you organize your paperwork, you have to maintain it.  Set aside a specific place for all incoming paperwork to land until you’ve had a chance to update the record.  Most of all, you have to make the time to update your file after every doctor visit, change in medication, or “event.”  A medical records system will only work for you if it’s kept up-to-date.

Medical paperwork doesn’t have to be the enemy.  Taking the time now to organize your information can save time, energy & stress when a medical crisis arises.

About the Author:
Robin Blinder is the owner of Consider It Organized in Tampa, FL. She is the proud caregiver to a young daughter living with ADHD and older family members living with cancer.  You can find more about organizing your life at http://www.ConsiderItOrganized.com.

Alzheimer’s/Dementia Hospitalization Wristband

Thursday, September 6th, 2012

My goal is to assure that all patients with Alzheimer’s or other dementia related diseases, will experience as calm and non-perplexed a stay as is possible during any time spent in a hospital. With this thought in mind, we have designed a memory loss wristband that will be assigned to the patient upon admit. Similar to a name band, this band is white with purple lettering, stating: “Alert Advocate.”

You cannot physically look at someone and tell they have cognitive disabilities. From my own personal experiences, while caring for my dad who passed away from Alzheimer’s, every hospital visit my father endured was a complete nightmare.

Attempting to never leave his side throughout those stays, knowing I had to be there to advocate for him, I once took a ten minute break to get some fresh air. Only to return to find a nurse towering over him, clipboard in hand, impatiently drilling him about his medical prescription history. This poor man couldn’t even have told her if he had even taken any pills five minutes ago. By wearing this appointed wristband, it would have alerted her of his memory-impairment, and that he should not be answering important medical questions that could lead to severe complications.

Another problem lies in when the patient is transported into a different department of the hospital for testing. The nursing staff on his or her floor may be aware of their condition, but once they leave that wing that band would do its job of vigilantly alerting every hospital employee of their condition.

Writing a weekly column on caregiving for the memory-impaired in the Tampa Tribune and the Hernando Today for many years now, I hear from caregivers globally on a daily basis. The horror stories I’ve heard of what these folk’s loved ones have sustained during hospital admissions would make your skin crawl.

Having been taken out of their daily routine, those suffering from Alzheimer’s and dementia are already drenched in extra confusion during these hospital stays. I firmly believe this would make their hospital admissions safer and less tormenting for them and their families.

Brooksville Regional Hospital in Hernando County, Florida, will be the first hospital in the country to run a pilot program for this. They are currently finishing up the legal aspects and the project should be starting within the next 60 days. I look forward to making life easier for patients and their families.

Gary Joseph LeBlanc is the author of, “Staying Afloat in a Sea of Forgetfulness” and co-author of “While I Still Can.” Also, a weekly columnist of “Common Sense Caregiving” published in the Tampa Tribune and Hernando Today and many other health publications.

His writings and speaking events utilize his 3,000 plus days and nights of personal caregiving experience to help other Alzheimer’s and dementia caregivers cope with the everyday challenges and emotional struggles of caring for the memory-impaired.

Attending the “I Can Do It” event in Tampa

Monday, November 29th, 2010

As a professional caregiver who has been a family caregiver, I am often inspired by teachers and authors of books about using your full potential. Louise Hay, who is a metaphysical lecturer and best selling author of numerous books who also founded the “I Can Do It” conference that has been coming to the Tampa Bay area for a few years.

She has this gift of bringing several metaphysical teachers together for a weekend of motivation, inspiration and fascination that leaves you wanting more.  It was thrilling to see Louise Hay up on stage announcing that she is writing a book and returning to lecturing at age 84 because she feels guided to do so.

To this day, if I”m feeling stressed or uneasy, I just pop one of Louise Hay’s cd’s into my car sound system and allow myself to calm down, take deep breaths, and trust that I was safe in the universe. But when I was an active family caregiver I would use these simple, but powerful steps to gain calmness and clarity, which prepared me for my visits with my in-laws who were having difficulty adjusting to physical, medical and mental changes that were occurring often in their lives. My ability to remain caring, centered, and clear helped guide me to the next best steps for their care.

(more…)